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My family and I are slightly obsessed with Christmas. We usually can’t wait to set up our tree which is a celebration that is infused with a few of our own traditions. The most important being that we have a special dinner afterwards to kick off the countdown to Christmas Day. But before we tuck into a sumptuous meal (which I never spend more than an hour making, because simple, easy dishes are fundamental to my sanity); we complete a few other traditions. One segment being the specific part that each of our children play in ushering in the Christmas season when we decorate the tree.

Eli places the star at the top of the tree, which has always been the job of the youngest child.

When we only had the girls, it was then Talisa’s job to crown the tree with the star. Now she has the job of switching on the tree lights.

 

The Christmas baubles with photographs that are on the tree were made by my sister-in-law as a gift to us in 2015.

Savannah being the eldest gets to place the wreath on the front gate with help from Michael. Each person places their own Christmas ornament on the tree and we capture the moment in a photo to mark the occasion. I keep photographs of this moment for each child for almost all their lives.

We have ornaments for extended family too and they get to decorate our tree with it when they visit us. Then we have ornaments from friends and family who live far away and we think of them as we find a bare branch for their ornament.

As I watch my children taking more of a lead in decorating the tree and I listen to their banter about continuing these traditions in their own homes one day, I’m struck by the contrast in what makes up their childhood memories and in what makes up my childhood memories. This time of year can be a wonderful experience for many children when their families look forward to coming together to recreate moments from an ocean of memories filled with traditions, warmth and love.

The festivities were of no interest to our black labrador Blue.

For adults with traumatic childhoods, this time of year can be a sad reminder of what we missed out on as children. The magic of Christmas are only drops in our ocean of memories. I remember so many Christmases as a child feeling an ache inside of me as I ‘made-believe’ that I was happy. I wrote about this earlier this year in the post The Past And the Present Met and in a post last year You Cannot Be Depressed Then There Was Me

I remembered so badly wanting the make-belief to be real. With that childhood as my backdrop, I became a parent to a child with a disability at eighteen years old. I had to parent within a family and a social circle with loose morals and a tight grasp on maintaining the look of success at all costs.

For many Christmases as a parent I wrestled with depression and suicide. Not having developed skills to recognise and to deal with trauma, meant that I felt more overwhelmed at this time of year as my life became defined by my daughter’s special needs.  It was a very long process to becoming mentally and emotionally strong.

What kept me from completely going over the edge was the determination to raise my children in a life that was without fear, without self-doubt, without question of my love for them, without insecurity and without violence.  I wanted my children to know what it felt like to look forward to weekends and school holidays and to enjoy being with their parents in peace. I wanted them to have the freedom to express themselves freely and honestly without restraint or fear of disappointing anyone.

I wanted them to want to live each day to its fullest.

I wanted to ‘want to live’.

I wish someone told me that it was okay to be depressed and that I could still live a good life. Now I’m telling you. You can still live a good life.

I wanted to get better from having lived with sadness for so long. It felt like it was in my bones. It was so much a part of me that it took a long time for me to recognize it. But eventually I did. I did whatever it took to get better. For me it meant learning to believe that my life had value. I found that value in understanding who I was as a child of God. I am so eternally grateful for that simple truth and all that it has given me.

Becoming more of who I was meant to be was a process of understanding my faith and understanding myself. I could not always get professional help and it was incredibly tough to have to deal with my demons very much on my own at times. There were relationships that I could lean on at different points, in big ways and in small ways. There were also very dark days when no one understood what I was going through. I wish I had known about the South African Depression and Anxiety Groups website which would have been incredibly helpful in finding resources.

Someone told me they felt I write to ‘poke the world’. I guess that is one way to look at it. Though I have never intended to do that. I simply write because I’m grateful. To have lived with depression and to have overcome suicidal feelings while being responsible for what seemed like everything and everyone, is a story worth telling. It is worth telling from all its perspectives and all its shades.

It is especially worth telling at Christmas time, when I am snuggled in my home with my Christmas tree twinkling away and the memory of all my loved ones beaming with delight keeping me company. December is a time when many people from all different walks of life are more likely to be depressed and suicidal. If this season makes you hurt like hell and you can’t find something good to hold onto then please remember this:

The past is made up of memories. You are a seed of hope. Starting today you can make new and beautiful memories.

You are as capable as anyone of having a good life. Believe Me.

We love our Christmas ornaments. Each tell a story of a life of abundant love.
For helpful and practical advice about how to deal with the Christmas Blues, you will find this article Understanding and Coping With The Christmas Blues by @DarleneLancer worth a read: 
I particularly like the helpful online videos from the South African Depression and Anxiety Group.
Today Savannah is reminiscing about the wedding last year when I was the MC and I danced a special dance.

Now that I work from home, it is a mixed blessing.

My children and my husband love having me around and I find we are using our time more productively. I wake up everyday excited to meet the day. I can’t remember ever feeling like this in my whole life.

For those families who have a child with a disability, you will know why this dynamic is precious. My daughter Savannah is witty and funny and kind and thoughtful. She is also different in her way of thinking and feeling.
She is my ever-long learning course. Teaching me all that I don’t know and often after working hard at understanding her point of view, I come back to the realisation that I just can’t reach all the depths that her mind wanders too. As an autistic person, she sees life in a way that I work very hard to understand; only to find that I fail.

So often I fail. My struggle to keep up with the “normal” world collides with trying to grasp her view; and I become frustrated, and angry at myself. At her. At this life and it’s persistent demands. Yet, I have to live in both worlds. I have to try so hard to keep up with life so that I can be part of it’s rat race and try to earn a living to provide for all our children.

Governing all that we do, like so many families like us, is that we must try very hard to earn more than a living.
We must provide for Savannah long after we are gone. And that is what keeps me awake till the early hours or gets me out of bed long before the sun rises. Working from home while also being a caregiver, a companion and all that encompasses being Savannah’s mother, is my “more than a conqueror” daily challenge.

If I could stay at my desk all day, I would not eat or drink because truly writing feeds me like nothing else does. But my reverie is broken every time when Savannah calls me. Sometimes what she needs is reasonable and makes sense that she called me. Other times, she calls me to tell me something so far off base from the moment that we are in, that I throw my hands up in the air and proclaim out loud that I don’t need to know the tit bit of information that she is supplying. She doesn’t grasp that I can’t know what goes on on her head and so we tussle with memories until I either get what she is on about or I give up and walk away.

For example, a month ago she suddenly jolted to March 2014 and for several days, she recounted everything she remembered about that time. Everything. Details like what earrings I wore and who we saw. People who I have long forgotten. She remembered their earrings, their watches and who said what, when and where. As I fight back the urge to weep for what feels like the hundredth time that she calls me to say something that I cannot see the relevance in; I ask myself if anyone else lives in so many spaces all at once? And if so do they survive themselves?

Right now, I am in the middle of writing about Domestic Abuse for the UNWomen’s Campaign and it takes me back to times in my life that I have closed the door on. Yet, now at forty, the shock of what I was allowed to be privy too as a child, washes me afresh. I have several other writing projects underway and a new client who I have to do some research for. So my mind is a little more than preoccupied on a daily basis.

Then Savannah calls. Again. Not being sure if she needs physical assistance or if it is just another newsflash from the past; I walk to where she is because that’s my life.

Looking back over the years, I’m most in awe that while I was trying to glue my heart back together as a teenager who learnt too much about the hypocrisy of the adults around her, I somehow kept my sanity as I became Savannah’s mother. Over these twenty-two years I’ve listened to the same story that my heart didn’t have the words to utter when Savannah was little. Parents grappling with the heartbreak of the unknown as their child begins life in a world designed to set itself against them. The most competent of people, crumble as they understand the force that will be required to help their children live their best lives.

Each time, I’m stunned anew that a girl like me became Savannah’s mum. What was God thinking to trust me with her? It has never been easy. There are days when I wish I did not know of the things I have to know. But I survived and I have learnt how to thrive right where I am. Having Savannah at eighteen was probably the worst thing to happen in a life already falling to pieces. Yet years later I understood that being Savannah’s mother saved my life. Who knows what I would have become, had I not have to fight for her in all the ways imaginable and unimaginable? Would I have known how to fight for myself or for that matter would I have known that I could change the course of my life?

Even now as I try to juggle housekeeping, children, writing, keeping up with everything, Savannah calls. She is now remembering December 2017. She wants to play the song I performed at my cousins wedding. I’m not in the mood for this and I grumble something to that effect.

As I walk away from her with the clock ticking and the checklist running in my head of all that I have to get done today, I hear her say: “Pretty mum the wedding. My mum good dancer. Well done.”

Savannah and I decked out at a wedding last year.

I can’t help looking back at her as she gives me a big grin. Maybe I am wrong again. I don’t think I am looking after her at all. I think she is looking after me. Drawing me away from the square boxes everyone is fighting to fit themselves into.

If you have heard me speak you will know that one of my key points is that there aren’t answers to everything that life throws our way. For those moments, there is always dance.

And so as Savannah played the song “Tere Bina” from the Bollywood movie Guru for the umpteenth time this morning, I took my own advice; and I danced. She clapped and squealed and made her happy sounds.

No one ever tells us that the lines of our broken hearts, make for the most polished dance floors. Or that dance is meaningless unless someone gives you a beat to dance to.

A few days ago I posted a quote about parents empowering their children.

It’s a tricky business being a parent. The intense roller coaster of emotions that we experience while knowing we are fully responsible for another human is safely the hardest journey to be on. It is also definitely the deepest, most beautiful bond we can ever experience.

And this entanglement of emotions can sometimes cause parents to be down right “crazy”. We have to know how much responsibility to give our children and when they are ready for different levels of responsibility. We have to teach them to be strong, brave, independent and maintain their sense of curiosity, while we are supposed to also protect them. Once you become a parent, the whole independence thing just seems way too overrated. I mean, it’s completely plausible that a child can be dependent on their parents for a while? Maybe until they are twenty-five or maybe even thirty?

There I go doing the crazy parent ramble. The one that makes children want to panic.

But have no fear my friends. I’ve never been the parent who wants to hold my children to me forever. I’ve always maintained that I am raising them to leave because I know that they will be fully capable of eventually building their own lives. Michael and I are fully committed to our vision that our children will be their own heroes. Even for Savannah,who is likely to never leave home, there are still some areas of independence that Michael and I expect from her.

Therefore it was a great delight to me when my mother and Talisa showed me the video (link below) of the speech Deepika Padukone gave when she received the FilmFare award for Best Actress two years ago.

Deepika Padukone is the darling of the Bollywood Film industry and has the world at her fingertips. She read a letter that her father Prakash Padukone, a Badminton legend for India wrote to her sister and her. It’s a wonderful example of how to give our children wings while keeping their hearts humble.

Enjoy watching this touching video of a parent child bond that is filled with love, trust and faith. Then let me know in the comments what your best advice is to your young adult children.

https://youtu.be/TuZRUMpnTkA

In March this year I was chosen as the Most Inspirational Blogger in the SA Mommy Blogger Awards. It was my goal to pay tribute to the other category winners. This year has taken a somewhat winding path, and I did not complete that goal. I intend to do that whenever I can by sharing a post each week about the winning bloggers. They are each talented and delightful in their own way, and together these bloggers give us readers a wonderful view into lives and topics we would know nothing about.

Today’s featured blogger is Chevone Petersen of www.chevslife.com. I was excited to learn that Chevone and I have a few things in common: we both love writing, we are part of the autism community and we are passionate about parent empowerment.

Chevone’s winning blog posts were:

The Last Boy on the https://chevslife.com/2017/08/16/last-boy-train/ ;

and

She Got Her Wings https://chevslife.com/2017/01/12/she-got-her-wings/.

Get a coffee and doughnut then click on over to Chevone’s blog and have a look around. Her writing draws you in and makes you feel that you never want the story to end.

Chevone, thank you for Unmasking Your Journey to Optimism.

Happy Friday Everyone

As a mother to three who had so much going on for several years, I did not get the chance to explore what fashion and beauty trends worked for me. I did not know how to develop a proper care routine for my skin, my make up and my hair. For those of you who follow my blog, you will know that this year has been about exploring new hobbies and personal challenges. I have dedicated one year to myself. Sounds rather selfish when I re-read that. Yet I think it is actually one of the bravest things I have done.

So when I won a make over session with MakeUp Artist to the stars, Ryno Mulder; I was so excited. Then as the day drew closer, I was also a little nervous. Reality is that when you bare your face to someone for a couple hours, and allow them to do your make-up, you bare a little more than your face.

Up close and personal, all your flaws are now visible to someone else and that can be a little disconcerting. But Ryno is a true professional and a genuinely easy going, sweet soul and put me to ease within 10 seconds of meeting him.

I booked the session on the afternoon of my fortieth birthday. It felt right that I mark the day in this way. Sitting just within a window while the sunlight danced outside to the sounds of Indila, a Turkish music artist, I was literally transformed. While Ryno worked and we chatted, I was pleased to realise that I actually knew one or two tricks of the trade such as doing your eye shadow before your foundation and concealer so if any powder falls on the cheek bones, it can be cleaned away.

My greatest issue are these dark circles under my eyes. I think that is a problem that many women have. I knew that I should use a concealer. But which colour concealer? Ryno explained that orange was the concealer to use. The skin under the eye, is the thinnest skin on the face. Usually it is the blood vessels under the skin that for various reasons show through the skin causing the area to appear darker. That hue is a blue-green colour. So in order to conceal it, person like myself must use an opposite colour to blue-green, which in my case is orange. Voila! Now I know instead of bemoaning my dark eyes, I can do something about it.

I had to ask about contouring. Let’s face it, we didn’t really know how important contouring was until Kim Kardashian made women around the globe realise we can all have great cheekbones with the right colours and brush techniques. Ryno said I didn’t need that for day to day make-up. But yes for evening, glitzy events or certain types of photographic shoots, it could be something to try.

For my lips, Ryno used Mac Current Lipliner, Mac High Drama Liquid Lip Colour Ombrèd into Stila Lume Shimmer Liquid Lipstick. Oh my soul! I love lip colours and often when I’m tired, a great lipstick rescues my face from looking completely ashen. This blend was stunning and it lasted way into the night.

When I finally looked at myself in the mirror, my immediate thought was “Wow, I can still recognise my face, yet I look better than I believed I could look”. I wanted to cry but I can’t exactly pin point why I wanted to cry. I will admit, that my the fear of dabbing my face and changing one millimeter of my make-up kept me strong. This experience was big for me.

Many women for many reasons can’t see themselves looking and feeling good because sometimes life is too hard for too long, and we forget what “good” feels like. For me, by surrendering to the process and trusting Ryno to do my make-up the best way he saw fit; I can say that there was not better way to have spent the afternoon of my fortieth birthday. Thank you to SA Mommy Blogger Awards for the prize and Thank you to MakeUp by Ryno for your time and talent.

You can follow him on Facebook & Instagram. Thank you for this wonderful experience Ryno!

I’ve started jogging twice a week in addition to attending training sessions at a Body20 Studio. To my surprise Savannah asked to join me on my jog.

This is pretty big for us because since Savannah was sick last year, she stopped going out as often. There have been periods of three consecutive weeks where she did not leave our home at all because she felt too ill.

 

So far this year, she has returned to church with us, is trying to manage her own diet and has even joined me in a photo shoot and on visits to some sponsors for @MRS_SOUTH_AFRICA. And today while I kept my pace in my jog; Michael helped Savannah as she wheeled herself for a few metres.

I would never have guessed that of all the women I would inspire by taking time for myself this year it would be my daughter, Savannah.

How life can come at you in a full circle moment! For so long Savannah was my inspiration and now I can be hers. I’m so grateful.

What is it that makes you jump up and greet the day? What keeps you from giving into the fears that yell out to stop? How do you keep yourself motivated?

I’ve stared down some dead ends and often when there was a choice to be made, it meant choosing between all tough alternatives.

Even now, everyday I face the greatest and toughest challenge of all. Myself.

I’m made up of too many things that tell me I should just accept mediocre. I should be satisfied with just being defined as a mother, or “the mother of the child with the disability”.

I should accept that all the mountains I’ve scaled have defined me and like the Lady Galadriel in the Lord of the Rings; “I should retreat to the North” and remain forever just as I am.

The thing is many of the mountains I’ve scaled were not of my choosing. So many times due to necessity and for the greater good of the people involved, I made decisions just based on getting through the moment.

Still I am mindful that on so many levels I have been blessed with having made a magnificent impact in my world. I am grateful for having had the ability to raise three respectful and amazing children and to be in a marriage that has only grown ever stronger over the years. Yet, I want something more, something defined only by myself and not by the mountains before me.

It’s like being the student who scores an A plus in Maths, then becomes a maths wizz with a high paying job, but actually wanted to own a patisserie and serve great desserts and coffee. No, I’m not a maths whizz and no, I’m not in a high paying job. But you get the analogy. I wanted to do what sets my soul on fire.

Here I am, a day away from turning forty years old and am exhilarated by the revelation that I can still pursue ME.

I know that sounds so strange but for twenty years or so I’ve been doing what most women are taught to do: to put yourself at the bottom of the list of people to care for. As wives and mothers it seems honourable to leave yourself out of your circle of care. Yet if you aren’t looking after yourself; you can’t really look after anyone else.

While I understood the concept of self care, I had no idea how to put myself at the top of the list.

I became a woman who stopped looking in the mirror because I didn’t want to see the girl who wanted more from life.

That girl in the mirror kept reminding me that I was smart, funny, maybe needed to shed a few kilograms but still looked okay. I was also thoughtful, passionate, hard working, powerful, kind, wise, determined, a dependable daughter and sister, and a really dedicated mum and a fantastic wife. She would not let me forget that God loved me.

That girl annoyed me. She scared me. She frustrated me. Yet in all these years she has never left me. Now, as I surrendered to the process of being a semi-finalist in the Tammy Taylor Mrs South Africa Women Empowerment Programme and also pursuing my love for writing as a Blogger, I finally understand her.

I am everything life has made me and I am also everything I dare to be. It was never about choosing between being all those roles that life called me to be. It was about accepting that I am those roles…. And more.

So I can answer my own questions that I began this post with.

I get myself out of bed every morning excited by all the possibilities still to come. I meet the day with the ache in my heart for all that I have yet to live through, but I rise knowing that God’s grace has brought me this far and will take me to where I need to be. The mornings bring me hope for another chance to be more than I thought I could be.

That girl from the mirror is no longer in there. She is where she should be: exploring what sets her soul on fire.

She is unafraid and unashamed. She is ME.

With much excitement and respect here is the one of the features from @Mamma Chef Jozi that won her the title Best Foodie Blogger. Preparing healthy and tasty meals is every busy mother’s challenge. So Jeanne-Riette aka Mamma Chef Jozi has made it easier for us by sharing her rendezvous in the kitchen as she prepares meals for her beautiful family.

I especially love her concept and the shopping lists and ideas that she shares. As a mum who spent lots of time in therapy sessions and doctors rooms for my daughter with a disability, preparing meals was last on my list. I usually ended up throwing together something that went from a box to an oven. Many of my friends who parent special needs children shared the same struggles and we wished that the thinking aspect of what to cook and what to purchase to cook; could be done for us.

So to Mamma Chef Jozi, I wish I met you years ago but so glad I know you now. To the readers, please be warned of the following: You will read Mamma Chef’s posts at the risk of feeling very hungry afterwards and wishing Mamma Chef was your best friend or close relative so you could drop by for one of her delicious meals.

The blog posts that grabbed the title for her were Festive Freshness – A Holiday Meal Plan

Festive Freshness – A Holiday Meal Plan

and The Easiest, Fluffiest Blueberry Pancakes Ever

The Easiest, Fluffiest Blueberry Pancakes Ever

Please follow her blog for more awesome recipes and advice.

https://mammachefjozi.com

When Love is Not Enough

A few people have asked me which blog post won the SA Mommy Blogger Award for me?

It was “When Love is not Enough”, first posted on November 13, 2017. I am reposting it today, and I am also excited to announce that I will feature each of the category winners over the next few weeks. From travel to food to education to comedy to great stories about real people; watch this space for more beautiful people who share their talent through the platform of blogging.

 

When Love Is Not Enough

What a surprise for Michael and I to read Talisa’s essay. Her teacher wrote”Look after Savannah – she is a blessing. Treasure what you guys have. I think with some polish you can be a great writer”.

I agree.

Here it is.. Talisa’s perspective.

Who is Savannah? You may ask. Well she is my almost twenty year old sister. No biggie,right. You are probably thinking just a twenty year old girl in varsity who goes out to parties and gets her hair done every week at the salon. Just like any other twenty year old. But she is different. Savannah is uniquely different.

Savannah is autistic and has cerebral palsy. Autism affects how she experiences the world. Her brain is just wired differently. Cerebral Palsy affects her body. It doesn’t function the way ours does. She also had an operation to correct her scoliosis. She had rods put into her back to keep her up straight. The good news is that her back is straight. The bad news is that she lost her ability to walk and now uses a wheelchair.

That was honestly the hardest time for me. I couldn’t grasp the idea that one minute Savannah and I were playing Hide-and-Seek, and the next minute she couldn’t even get from the bedroom to the bathroom on her own.

During that time we lived in a tiny townhouse in a complex. Our unit was upstairs, so my parents carried Savannah up and down those stairs for four years. Eli , my brother was a baby then, so they also had to carry him up and down those stairs. Savannah and I shared a room since I was two years old. When she had the operation I was six years old and my parents tried to get me to sleep in another room. But I didn’t want to be away from her.

Even though the house was small, I have the best memories of that time. Savannah and I used to dance together all the time (before the operation), and we played “teacher-teacher” or “doctor-doctor”. It did not worry me in the slightest way that Savannah was different from other sisters. In my eyes she was and is as perfect as can be.

In 2013, we moved to a bigger house. This house was like a palace compared to our tiny house. It has a pool, a front and back garden, a lapa and even a cottage for my Gran. My Gran’s cottage is way bigger than our old house.

We all have our own rooms. It was weird for me at the beginning; not having Savannah with me. Eventually I got used to it. But there are still times when I miss having her in the same room as me.

I am an animal lover and the best thing that happened to us, is that we have a dog now. His name is Jaime and sometimes he sleeps in my room, sometimes in Savannah’s room and sometimes in my parent’s room. This was the start of a new chapter for my family.

Savannah no longer attends school as she cannot cope with it. She used to attend the Johannesburg Hospital School for autistic learners, but after the operation, she was unable to physically and mentally cope. My parents tried respite care for Savannah to have a break from us and for my parents to have a break from caring. It’s not easy being a parent, but being a parent to a person with special needs is much tougher. We thought we all needed the break but it was not so.

It was too weird not having Savannah there with her music blaring out when I got home from school. I felt sad that she was not there to ask me a million questions about my day. Although these things can sometimes be annoying, that is what makes this family. We all felt lost and empty. I missed her. We all did. When she came back we couldn’t let her go again because our home was not the same without her.

She spends her week days at home and my mother has designed a program so that she is still learning. Everyone in our home helps Savannah to do something everyday. It can be baking, tracing letters and numbers or helping her to type e-mails to her old friends. She can’t read or write but uses a special picture program to type. On week-ends she does whatever we are doing as a family. Sometimes she has her own plans with her friends.

All Savannah’s quirks and strange ways, have made our family weird and unique. I would not want to change that! I will always continue Loving Savannah.

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