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Birthday Celebrations

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This past weekend we attended our friends sons’ birthday party where they had an amazing Wild Animals Educational show. My daughter, Savannah and the birthday boy, Kurt have been friends since they were little children. We have attended a few parties at his home and Maggie, Kurt’s mum throws the best birthday parties for him. When I told Savannah that we would be attending the party, she immediately inquired if there would be animals. She remembered that Maggie usually has an animal show for Kurt’s parties. This made Savannah a bit anxious because unlike Kurt, she does not like animals very much. The only animals she loves are our two Labradors.

Yes, that is a Tarantula on my hand. And yes, it is alive!

As a person with special needs, Savannah requires a fair amount of support in some situations and this time was no different. We had to  make sure that she was emotionally and mentally prepared before the party to cope with her anxiety and concerns. One way of doing this was to reassure her that there would be no pressure on her to engage with the animals. We discussed with her that her daddy would sit with her as far away as possible from where the animals would be. She was happy with this arrangement and began looking forward to the party.

On the day of the party, Savannah did not back out from joining us as she usually does and was excited and happy to attend. Kurt, Maggie, her family and friends are some of the nicest people we know and Michael and I were looking forward to being in their company. As expected the party was relaxed and easy for Savannah. She was also very happy to see Kurt. Before the animals arrived, she repeatedly confirmed with Michael that as agreed, he would sit with her away from the animals.

Savannah and I with Kurt and Maggie
Julian from the WILD ONES Educational Show arrived in his bakkie (South African word for a small pick-up vehicle) full of cages and containers. We watched Julian set up, and Michael and I with some trepidation watched Savannah, watching Julian set up. A few years ago at Kurt’s party, Savannah clung to me for the duration of the party and was miserable and cross because she was so mortified by the animals.

As an autistic person, Savannah’s perception of some situations is different. What might feel fun and exciting to us can be uncomfortable and frightening for Savannah. In order for the whole family to enjoy life together, Michael and I had to make peace with the fact that Savannah will always require some level of support in many situations. Fear is a debilitating emotion and we know that Savannah’s fears are real enough for her, and therefore warrants our respect and patience.

That was the mindset that we had at the party but to our surprise and delight, Savannah decided to join everyone in the area of the garden where the animal show was going to take place. Julian kicked off the show by introducing us to a tarantula. Yikes! I know. I never thought I would hold a spider nor one as scary as a tarantula. But Savannah was watching Michael and I with keen caution, and so I held out my hand and took the spider. Then I held a bearded dragon and a barn owl and the list goes on.
Eli let a Corn Snake coil around him as Savannah watched in amazement.
Then he coaxed her into touching a bunny which we named Peter Rabbit for her benefit. That was one of her favourite childhood books.
Michael who is by no means an animal lover delighted her by holding a tarantula and whistled to a Cockatiel, coaxing it away from my shoulder to his shoulder.
I struggled to fight back the tears when we met the barn owl. Some years back she was caught in a trap and had lost one leg. So she cannot fly and is fully dependent on Julian for her food. As a mother to a daughter who uses a wheelchair and a sister to a brother who is an amputee; that little owl represented the vulnerability and the tenacity that I saw in my daughter, in my brother and in Kurt. More than that, Julian’s care and commitment to this sweet bird spoke volumes about something all of us at the party understand but rarely see outside of our lives as families of people with disabilities.
That is the act of simply caring for one another. Not based on what we will gain or what we will lose, but only for the reason that we are human and we have compassion.
Often people look at Savannah or Kurt and they feel pity. Understandably so because they see themselves as having more abilities than our children do. Often we as families are judged from their limited viewpoint about what we are doing and what we are not doing for all our children. Here’s the thing though: We are here caring until forever. We are constantly finding delight in life no matter what fears and unknowns and awkwardness and frustrations we face. So the pity we get is actually misguided. It belongs to the rest of the world. While our lives take us to difficult places in our hearts:
  • we know what “unconditional” means.
  • we know what depths of love and care truly exists in the human spirit, and
  • we know just how shallow so many lives are because they have not yet learned to give without counting the loss or the gain.
We knew from the beginning that parenting would be a daily exercise of giving of ourselves. It would be letting go of fears and showing up for our children no matter how we were feeling.
What we learnt was that parenting a child who has special needs is sometimes about giving all of yourself. It is about conquering those fears every moment of every day and learning to live with passion and joy knowing full well that your worst fears for your child can become your reality.
We do not know when Savannah will be keen to attend another event so we soaked up the afternoon with Kurt, his family and those glorious animals. We were carefree and delighted as we held tarantulas and snakes. Now that is a great paradox for the life we live, isn’t it?
Being courageous even when our hearts are uncertain.
A very special “Thank You” to Kurt, Maggie, Kevin (Kurt’s dad), Gabriella (Kurt’s sister) and their extended family for being one of the bravest, nicest people we know.

Today Talisa turns sixteen years old. Where did the time go? As we reminisce over the last sixteen years, I’m thankful for so much. Mostly I am thankful for the special relationship that Michael shares with Talisa.

Few fathers understand how to be a dad to a daughter in the different phases of her life. Michael was raised in a very conservative family who believed that wearing dresses, amongst other patriarchal ideas, was how a women showed her dignity. The focus of what made a strong, courageous woman was placed on all the physical aspects of being a woman, and not on what counted….a woman’s heart, mind and soul.

Far from his conservative upbringing, Michael has raised his daughters with the freedom to express themselves and with the confidence in knowing that nothing they do will ever change his love and commitment to them. They are his greatest delight and his deepest heartache as he mourns silently all that Savannah will not experience in her life as a woman with a disability.

From the softness he shows his daughters in so many ways; to indulging their musical tastes; to patiently waiting outside change-rooms while they try on clothing or can’t decide what colour blusher to buy; to waiting while they take over the mirror in our bathroom; to accepting that he will buy hair bands and lip glosses far too often; to sitting up at night until Talisa completes her homework: Michaels’ heart has completely been flooded by being a father to his daughters.

When a girl child is honoured and respected by her father; when she is made to feel capable, and still has a safe place with her dad to be vulnerable; she becomes the most remarkable gift he can ever give the world. A women who is whole.

Today as we celebrate Talisa’s sixteenth birthday, I am so emotional remembering the day she was born. I remember looking at her in my arms and telling Michael that he need only remember two things about raising a daughter:

The first is that you are guaranteed (for the most part) the first eighteen years with them until they become independent. That means only eighteen Christmas mornings when your children are all yours. To me if an average lifespan is seventy years then eighteen seemed like just a drop in our entire lives. So Michael and I agreed to do our best to make those eighteen years as amazing as possible.

Eighteen years where we will hold every moment with tenderness and gratitude before it slips away.

The second piece of revelation or advice if you will, that I gave Michael was don’t ever, ever let your daughters down. Never. Daughters will need their fathers because when you don’t have a dad, the world thinks nothing of breaking you. It knows you have nowhere to go.

Be the dad whose daughters don’t have to look for love in the wrong places or test life to figure out what Love feels like. A strong, capable women already knows what Love really is because she soars from the shoulders of the mighty man who raised her. And when she needs a soft place to land, it is usually right back in her daddy’s arms.

Today as Talisa turns sixteen she makes us so proud to be her parents. She is a remarkable sister, a genuine friend, a blessing to her grandparents, and in so many ways she is both mine and Michael’s ‘right hands’. She is my delight and her fathers greatest gift to the world.

Happy Sixteenth Birthday Talisa. You will always have my voice in your ear praying for you and my hand in yours whenever you need me. So too you will always have your dads’ arms to hold you and his shoulders to soar from. When the time comes for you to soar, don’t be afraid to fly high my darling. The view will be spectacular.

Never forget why we chose your name. May it be a reminder that God is always with you. We love you.

(The meaning of the name Talisa” is: “Consecrated to God”.
Categories: Hindu Names, Indian Names, Sanskrit Names.
Used in: English speaking countries, Hindu speaking countries.
Gender: Girl Names.
Origins: African-American.https://www.thenamemeaning.com/talisa/)
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