Tag: Autism

PLEASE SHARE And DONATE by 2 May 2018 – Let’s Do This for “Sam The Hedgehog”

PLEASE SHARE And DONATE by 2 May 2018 – Let’s Do This for “Sam The Hedgehog”

Over the years my family and friends who were parents themselves; have at different times said to me that they don’t know how to explain to their children that Savannah is autistic. They did not have the understanding themselves nor the vocabulary to teach their […]

The Post Newspaper Feature – Families raising autistic kids, adults need support

The Post Newspaper Feature – Families raising autistic kids, adults need support

While the world dedicates April to Autism Awareness in our house everyday is Autism Awareness and Autism Acceptance. That is the message we spread. We are humbled to be featured on The Post newspaper today to share Savannah’s journey as an autistic person. It is […]

A Letter to our Autistic Daughter on World Autism Awareness Day 2018

A Letter to our Autistic Daughter on World Autism Awareness Day 2018

To our daughter Savannah. Today the world celebrates Autism Awareness Day. We don’t need a day to celebrate you. As an autistic person you have taught us so much about Love and Respect. You have challenged our way of thinking and being. You have taught […]

This is my story

This is my story

When I was 18 years old I had my daughter Savannah. Being a teenage unmarried mother was deeply traumatic; but learning that Savannah was diagnosed with cerebral palsy was even more so. It was a torrid period in my life. I was married and divorced […]

Loving Savannah – by Talisa Pillay

Loving Savannah – by Talisa Pillay

What a surprise for Michael and I to read Talisa’s essay. Her teacher wrote”Look after Savannah – she is a blessing. Treasure what you guys have. I think with some polish you can be a great writer”. I agree. Here it is.. Talisa’s perspective. Who […]

Jozi4Autism Main Speaker

Jozi4Autism Main Speaker

Join me on the 25th of March 2018 at the Johannesburg Zoo where I’ll be helping you to understand the power of communication for the autistic community. “Our speaker is superwoman Desirae Pillay – mother to an autistic adult daughter, assistive technology advisor at Inclusive […]

I Know Different by Tricia Proefrock

I Know Different by Tricia Proefrock

I don’t believe in assuming what Savannah might be thinking, but just as I imagine what I’d like Talisa or Eli to think about me, sometimes I imagine what deeper conversations are denied to Savannah and I because of her disability. “I know different” by […]

We are grateful when our child with special needs is acknowledged

Our family had a great treat on Saturday when Savannah was able to attend a wedding with us. After attending so many functions as a family of four; it was awesome to finally attend something as a family five. What fun it was to get […]

You need only be your own HERO-A letter to my second daughter for her birthday

You need only be your own HERO-A letter to my second daughter for her birthday

(Published with permission of Talisa Pillay) Honey-girl, It’s your birthday week. I am so excited for you. You are growing into a young woman so quickly. I love how your ideas are changing and how we can talk more and more about more complex “girl […]

This Is What I Do

This Is What I Do

Over the years I have been asked to write my story but there never seemed to be a right time or enough time. Recently my eldest daughter Savannah (autistic, is a person with cerebral palsy and a few other medical conditions) has been diagnosed with […]