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What is it that makes you jump up and greet the day? What keeps you from giving into the fears that yell out to stop? How do you keep yourself motivated?

I’ve stared down some dead ends and often when there was a choice to be made, it meant choosing between all tough alternatives.

Even now, everyday I face the greatest and toughest challenge of all. Myself.

I’m made up of too many things that tell me I should just accept mediocre. I should be satisfied with just being defined as a mother, or “the mother of the child with the disability”.

I should accept that all the mountains I’ve scaled have defined me and like the Lady Galadriel in the Lord of the Rings; “I should retreat to the North” and remain forever just as I am.

The thing is many of the mountains I’ve scaled were not of my choosing. So many times due to necessity and for the greater good of the people involved, I made decisions just based on getting through the moment.

Still I am mindful that on so many levels I have been blessed with having made a magnificent impact in my world. I am grateful for having had the ability to raise three respectful and amazing children and to be in a marriage that has only grown ever stronger over the years. Yet, I want something more, something defined only by myself and not by the mountains before me.

It’s like being the student who scores an A plus in Maths, then becomes a maths wizz with a high paying job, but actually wanted to own a patisserie and serve great desserts and coffee. No, I’m not a maths whizz and no, I’m not in a high paying job. But you get the analogy. I wanted to do what sets my soul on fire.

Here I am, a day away from turning forty years old and am exhilarated by the revelation that I can still pursue ME.

I know that sounds so strange but for twenty years or so I’ve been doing what most women are taught to do: to put yourself at the bottom of the list of people to care for. As wives and mothers it seems honourable to leave yourself out of your circle of care. Yet if you aren’t looking after yourself; you can’t really look after anyone else.

While I understood the concept of self care, I had no idea how to put myself at the top of the list.

I became a woman who stopped looking in the mirror because I didn’t want to see the girl who wanted more from life.

That girl in the mirror kept reminding me that I was smart, funny, maybe needed to shed a few kilograms but still looked okay. I was also thoughtful, passionate, hard working, powerful, kind, wise, determined, a dependable daughter and sister, and a really dedicated mum and a fantastic wife. She would not let me forget that God loved me.

That girl annoyed me. She scared me. She frustrated me. Yet in all these years she has never left me. Now, as I surrendered to the process of being a semi-finalist in the Tammy Taylor Mrs South Africa Women Empowerment Programme and also pursuing my love for writing as a Blogger, I finally understand her.

I am everything life has made me and I am also everything I dare to be. It was never about choosing between being all those roles that life called me to be. It was about accepting that I am those roles…. And more.

So I can answer my own questions that I began this post with.

I get myself out of bed every morning excited by all the possibilities still to come. I meet the day with the ache in my heart for all that I have yet to live through, but I rise knowing that God’s grace has brought me this far and will take me to where I need to be. The mornings bring me hope for another chance to be more than I thought I could be.

That girl from the mirror is no longer in there. She is where she should be: exploring what sets her soul on fire.

She is unafraid and unashamed. She is ME.

On the 7th April 2018, Michael and I celebrated our seventeenth wedding anniversary. Under different circumstances; we might have been the type of people who absolutely made a fuss about our most special day. But we are living in this life and when we got married the honeymoon literally ended when we returned home to the news that my parents marriage was ending.

A year later it felt awkward to celebrate our first anniversary as my mother moved out of her home and the reality of her being a divorcee dawned on her. Michael’s parents also thought that April was the best month to pay us a visit from their home in Kwa-Zulu Natal. My mother lived with me at the time. While it seems logical that I had three babysitters available for Savannah, she was not the reason we did not celebrate our anniversary.

While trying to get our minds around the fact that Savannah was a person with a disability; it was more complicated to navigate being newly weds while coping with our respective parents and their issues. I suppose in hindsight it wasn’t as big of a deal. Yet there are times I wish for a do over. I guess we all do at some point or other in our lives.

As the years flew by the toughest challenge in our marriage was being able to provide financially for a child with a disability. Therapists and doctors charge more than the medical insurers rates for their specialised services. Medical insurance companies have water tight clauses which leaves families with little room to manoeuvre when funds are exhausted. For many families like us funding the specialised therapies our children need usually results in our medical aid funds being exhausted by March of each year. It was difficult to work on a budget when our child needed therapy, special medical tests and special doctors. As parents we tried our best to provide for all Savannah’s needs as well as for Talisa and Eli too.

So celebrating anniversaries often didn’t make it to the top of the budget.

There were three years when we actually went away for the weekend. They were a good few years apart and were much appreciated. As we have grown older the celebration has become more about spending the day at home with the children and sharing a special lunch which my mother usually prepares.

This year Michael and I planned to go for a mid-afternoon late lunch to a nearby restaurant and that would have been the extent of our celebration. However on the Friday afternoon before our anniversary, we were told by our children that they planned a surprise for us for the next morning and we were to wait in our room until they came to us.

Promptly at 7:30 on Saturday morning our three children entered our bedroom with shouts of congratulations and gleeful singing. Then began what I can only describe as AMAZING.

Talisa and Eli explained to us that they wanted to do something for us that encapsulated what we had taught them. They said that they knew we made many sacrifices for our family and they wanted us to know they appreciated it. They practiced a line for Savannah to say: “Happy anniversary mum and dad. We love you”.

So began the morning. First Micheal’s left hand was tied to my right hand with a ribbon that had embroidered red hearts on it.

Then we were given our first clue. The clue was written on a square-shaped piece of paper that had the letter “O” printed on the flip side:

“The Roses are Yellow,

On this special day,

Where two hearts became one

Are captured in a frame”.

The clue led us to a framed picture of Michael and I on our wedding day that sits on my bedside table. Working together with our hands tied, Michael and I found our second clue hidden inside the frame. And so it went on, with us working out clue after clue.

Our children had written clues that took us to items or places in our house that meant something to us. Eli’s blue teddy bear that we bought when I was pregnant for him held a clue.

Savannah’s wheelchair held a clue that reminded us of her eighteenth birthday when she received her “Audi” aka her wheelchair with pink tyres.

Our bookcase held a clue and the clue that led us there paid homage to our favourite authors.

The funniest clue was the one on the bookcase. We had to sing aloud to one of Savannah’s childhood nursery rhymes. The clue told the true story of Savannah’s fish tank which was where the next clue was hidden:

One, Two, Three, Four Five

Once Vannah bought some fish alive

Six, Seven, Eight, Nine, Ten

Then somehow they died again

Why did they die so soon?

Because the water was not cool,

Can you guess what it is?

If you can then go to it.

All in all in there were seventeen clues to represent each year of our marriage. Each clue touched our hearts more deeply than the previous clue. When we had collected all the clues, our last task was to flip the clues over and put together the words it spelled. I get emotional just writing about it now.

Our children said when they think about us and as they come to understand what life is about; they realised that we have taught them that no matter what “Love Never Fails” 1Corinthians 13v8. That was what the seventeen clues spelt out: “Love Never Fails”.

Michael and I were simply amazed. They planned this for three days; working on the clues and putting it all together. They woke Savannah up that morning and helped her with her morning routines. I had no idea she was even awake when we were waiting in our bedroom because they were so quiet.

It was just the sweetest and heart warming morning all wrapped into one. On that note about sweet, all three children also prepared breakfast. They made home-made waffles with bacon and maple syrup:)

Could it have gotten better than that?

I think if you as parents take anything from this post, let it be that all our children are learning the most important lessons of life from us. As parents the sacrifices that we make will hurt us a bit. But to know that we are raising children who are kind, empathetic, generous and loving is worth the sacrifices. I would give up all the anniversary celebrations we did not do, again and again for this past Saturday.

Talisa and Eli aren’t deprived or less fulfilled because they have a sibling with special needs. They aren’t angry that life for them means we have to go at a slower pace. They understand the preciousness of the moments that make life worth living. They aren’t afraid to love and to live.

What more can we ask for? As parents and as soul mates, Michael and I can say our hearts are so full.

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