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A Million Beautiful Pieces

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A few weeks ago I came across this infographic from the National Council of Persons With Disabilities which I shared on my private Facebook profile.

The stripping away of the rights of people with disabilities is a lived reality. Whether they experience one or two of the denials or all ten, or more; it is a human rights violation and it is EVERYONE’S job to put an end to it.

So I was pleasantly surprised when two old friends who read that post asked what they could do to make a difference in South Africa to children with disabilities. My answer was simple: listen to people with disabilities instead of deciding for this community what they need. People with disabilities can help us to understand better than anyone what will be the most helpful supports for them. A few days later I was sent information about a joint project by The Solomon Academy and Bishop Bavin School (Bedfordview, South Africa). The Bishop Bavin School Pilot Project aims to educate and accommodate six learners with physical disabilities from sub-optimal backgrounds into Grade six at the school this year.

The learner’s educational plan will be individually designed to accelerate their skill set by ensuring the learners have the necessary technology as well as individual tutoring and medical aid. This project believes that every child deserves the best chance of gaining entrance to university. Furthermore, they aim to increase that number to twelve in 2019.

Now that’s doing something to put the power back in the hands of these learners. This is presuming competence and having faith with works.

The Solomon Academy is also running the Wheelchair Basketball Training Centre Rollout project at the school. Learners will acquire the skills needed to play and compete but the project needs a building to house the court, accommodation for the learners at the school, equipment and more. The aim is to house 40 children in the school by 2020 who will be part of this project. For international funders, this is a great opportunity to get involved in uplifting South African learners from previously disadvantaged backgrounds as well as aiding in furthering the policy of Inclusive Education. A capital prospectus is available for review for this project on request.

If you are like my two friends who want to make a difference, a REAL difference; then please speak to your places of employment about contributing towards a bursary or bursaries for the learners. Companies will qualify for B-BBEE points in either the Skills Development category of the new B-BBEE Scorecard or in the Socio-Economic Development category of the Scorecard. There other financial benefits for individuals such as tax rebates in terms Section 18 A of the South African Income Tax Act. Simply put you can get money back from the tax man when you donate.

It’s a win-win situation both for the learners, the school and for corporate and private South Africa. If you can’t contribute financially, there are other opportunities that will enrich your life even more than what you will do for a learner at the school, such as joining the volunteer program.

To help a child to get an education is the greatest gift you can give; especially when that child due to disability might otherwise be denied access to an education. Let’s stop throwing a pity party when we meet a person with a disability, and let us genuinely help to change the course of a persons life.

Have a chat with Andy Fraser or Quentin Robinson of The Solomon Academy to find out how you can help either with the Basketball initiative or with the learnership programme.

Andy Fraser 083 326 2928 or email andy@solomonacademy.org.za

Or

Quentin Robinson 083 446 6411 or email quentin@solomonacademy.org.za

or Donate to

Bank: S A Bank of Athens
Account number: 3000 000 4682
Branch code: 410506
Account Name: Bishop Bavin School
Reference: Solomon Academy

As a woman raising women and being married to a husband who believes I can do anything; our family are always aware of the gender inequality in society.

Then I am aware of the inequality in how people with disabilities are treated.

When you mix all that together, I am living the truth of the inequality against mothers like me. Women who are expected to be Super Woman in all areas of our lives while maintaining an income.

Currently I am struggling to find the right care for Savannah while I maintain a job. I have to work so we can provide everything our family needs. The notion of giving it all up and staying at home to take care of her full time sounds so heroic to many people but it is also folly for many families like us. Medicine and therapy costs us quite a lot of our income every month. We pay above medical aid rates for doctors and medical aid doesn’t cover everything that Savannah needs. Now that she is over twenty one years old, we are charged more by our medical aid company.

Please note that we live in South Africa and our government only provides a minimum social grant for people with disabilities that in our case will only cover the cost of one of Savannah’s medicines. We do not have suitable social programmes to assist families like ours in our country and when they do exist; corruption is rife.

So long story short… I have to work. And while my employers are the exception who are flexible and accommodating, being a mother to a child with a disability means I can’t plan for a career because I don’t know what bend Savannah’s life will take. I am mom… I have to be there for all of those bends.

If you believe in equality and in raising the stature of women in society, then please read this article by Sue Robins and add mothers like us to your cause.

We cannot only take care off a few demographics of women in society and leave the rest behind. A woman’s fight is every WOMEN’s fight.

We are the mothers who feminism – and the world – has left behind.

Join me on the 25th of March 2018 at the Johannesburg Zoo where I’ll be helping you to understand the power of communication for the autistic community.

“Our speaker is superwoman Desirae Pillay – mother to an autistic adult daughter, assistive technology advisor at Inclusive Solutions and AAC advocate. This talk will inspire you and change your perception of autism and communication.” – Jozi4Autism

Buy your tickets here.

Erin Hanson is a wonderfully, talented poet. She has a way of making us become introspective while simultaneously nudging us to look beyond ourselves.

I love her poetry because her poems resonate with different times of my life. Her words are like a good friend who goes with you to places that have caused you pain; holding your hand, saying “But honey look at you now. You are so much better than this”.

Now that I’m a mother to young people who are trying to find their place in society; I am aware of how easily my children can be built up or torn down by expectations placed on them by others or even by me.

These words are also very poignant as I reflect on the lives of people with disabilities and how we set ourselves as the standard that they must achieve in order to be “Welcomed to Society”.

Just saying….

https://www.wattpad.com/212243278-erin-hanson-poems

I love poetry and good quotes. It is amazing how the stringing together of words can effect a heart as powerfully as Mary Olivers’ The Journey affected me when I first read it a few years ago.

Enjoy xxx

One day you finally knew
what you had to do, and began,
though the voices around you
kept shouting
their bad advice —
though the whole house
began to tremble
and you felt the old tug
at your ankles.
“Mend my life!”
each voice cried.
But you didn’t stop.
You knew what you had to do,
though the wind pried
with its stiff fingers
at the very foundations,
though their melancholy
was terrible.
It was already late
enough, and a wild night,
and the road full of fallen
branches and stones.
But little by little,
as you left their voice behind,
the stars began to burn
through the sheets of clouds,
and there was a new voice
which you slowly
recognized as your own,
that kept you company
as you strode deeper and deeper
into the world,
determined to do
the only thing you could do —
determined to save
the only life that you could save.

by Mary Oliver

This poem is one of my favourite poems of all time.

It perfectly encapsulates my life from how broken and confused I felt for so long to how I learnt to be comfortable with myself just as I am.

It also impresses on me how much compassion and kindness we all need.

I remember when the world broke in,
To rip apart my soul,
For years after that one event,
I thought myself not whole,
My hours were spent with trying,
To fix it up with tape & glue,
Until one day I discovered,
Everyone else was broken too,
Here we were with pieces,
Of ourselves in both our hands,
So fragile and so open,
That I began to understand,
Maybe I’d been greedy,
To want my soul all to myself,
When it could be a lot more helpful,
In the palms of someone else,
Now every time I go somewhere,
I leave part of me behind,
And collect all of the pieces,
Of others’ souls that I can find,
So when I’m meeting someone new,
It’s not just me they get,
But also tiny fragments,
Of all the others that I’ve met,
And my life’s become much bigger,
Now that it’s home to things so small,
And if this is what “broken” means,
I do not mind at all.
– Erin Hanson

Image credit: Michon van Staden

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