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It’s the most wonderful time of year. Or is it?

Are you dreading the holiday season? Seeing family or friends who you would rather not see? Having to attend or host dinner parties you would rather not be part off? Trying to accommodate your spouses’ family while your own family have their expectations of you?

Maybe you already know that financially this is going to be a tight Christmas, and you can’t say that out loud without feeling like Scrooge? Or maybe you have gained a few pounds this year and the thought of going home for Christmas when you know that aunty “I must comment on your weight” will be visiting; is petrifying you.

And that is where I will start off this series of blog posts as together we wind down this year. For today I want to share some thoughts and ideas about how to deal with unsolicited comments about physical appearance. Over the next few weeks we will get to the other stuff like depression, isolation, and how to look after yourself when your life doesn’t look like the Hallmark Christmas Movies.
But for now let’s just weigh this important issue.

Firstly, why oh why is this even a topic of conversation? I’ve never understood why I’ve had to hear comments like “Oh my word, you are so fat” or “That dress is lovely but sleeveless is not right for you. Your arms are too big.” Or the other way “My word, you’ve lost so much weight. Is everything okay?” Or “I was telling ______________ that you look so much better now that you lost weight. You were looking terrible last Christmas.”

I entered Mrs South Africa after loosing some weight but I was still not exactly a “small” lady.

Why would anyone ever begin a conversation like this? Or for that matter even bring this up in conversation. Its mind-boggling that these interactions are still part of our social contexts when we are living in an age when both men and women have emotional issues that stem from having a poor body image of themselves.

We are taught from a young age to make excuses for family and friends who taunt with their crude comments. We tell ourselves that it is only cultural or that is just the way they are. I will also include here that even negative comments about skin colour, choice of clothing or hair style, comments about how a persons’ body has changed due to pregnancy or after medical issues or actually anything to do with physical appearance of any sort; are simply not topics of conversation at any time of the year, let alone during the holiday season.

Of course genuine, positive comments like ”You look lovely” or “I’m so glad to see you and I love your dress” or simply “It’s so good to see you” are perfectly fine and it makes spending time with our family and friends so much sweeter. When comments are unflattering, one cannot imagine the unnecessary hurt that it causes.

I’ve been in this situation a few times, and one incident is still so clear in my mind. I was collecting Talisa from school when I noticed an old family friend. He was an older gentleman, who I hadn’t seen in years. I was entering the school gate with many other parents when I saw him and I greeted him. He boomed out, “Oh Desirae it’s you. Oh my word. I didn’t even recognize you. You’ve put on so much weight.”

I was stunned to say the least. I had no idea how to respond to this in front of the other parents and particularly as I was feeling really depressed during this time. Savannah was recovering from an operation to her back and there were complications that we were coming to terms with. We were living in an upstairs unit in a townhouse complex. Eli was just over a year old and could not walk up or down the flight of stairs by himself. Everyday sometimes three times a day, I was carrying both Savannah and Eli up and down those stairs.

Savannah and I dancing at her 21st birthday party.

In the afternoons if I had five minutes to myself, I would dish up a large bowl of vanilla ice cream, squeeze a mountain of maple syrup onto it; down it and then continue with taking care of my three children. Hands up mums and dads if you have scoffed an entire box of chocolates or polished a bag of chips while your children needed your care! You know well enough what those days are like.

That time in our lives was so emotionally confusing as we delighted in Eli’s milestone of walking and were equally shattered as we realised that Savannah was losing her fight to keep walking. So yes, I ate the ice-cream and the cake and anything else that offered any sort of comfort. It didn’t matter that everything tasted like ash to me anyway. It was just the way I was coping.

That old mans’ comment felt so cruel and so shocking to my very soul. I felt like a failure: unable to stop the regression that was claiming Savannah’s walking, and unable to keep my weight down. Those words just made me hate myself for not being able to be thin and for not being able to keep Savannah walking. I am generally a practical and logical person but this brief meeting shattered me. And it gives you an idea of how a seemingly innocent quip, can be havoc for another person.

How did I free myself from allowing these shallow comments to hold me hostage in my misery?

 *Do you know that you are a child of God and that it’s wrong to disrespect Gods creation?
First, I asked myself are these “weight commentators” that important ? Would they cope with a small percent of the challenges I have lived through? Even if they had their own challenges to survive, clearly if they are making hurtful comments, then their life challenges did not change them for the better. No. You can’t take anyone seriously when they have no depth of character. For myself when I meet people, I see more than a physical form. I see them as a child of God.

*Do you love yourself?
Then I asked myself what did I want? Really, did I want to be supermodel thin and have my body poked and peeled and worked at while Savannahs’ disability changed her body in a drastic painful way? No I didn’t want to look like a supermodel. I wanted to help Savannah to love herself even as her body started to work against her. For my own well-being and for my children, I learnt to love myself irrespective of what size dress I fit into.

*Do you know what a “good looking” body means for yourself?
I also asked myself to define what a good-looking body meant for me? My answer was that I wanted to wear clothing that flattered what I liked about my body without feeling ashamed. Fat arms and all. I also wanted to be able to run down the soccer field with Eli, wear high heels to impress Talisa and still lift Savannah when she needed it. I wanted to feel pretty good with myself whether I was a size fourteen or a size ten as long as I could do those things with my children. Now that would be a body to cherish.

This was the day Eli was selected to play football for the local district.

*Do you have a plan of how you will protect yourself from “weight commentators” this holiday season? 
Lastly I asked myself how am I going to deal with shallow, misplaced comments about my physical appearance? The answer was I won’t. If a person is so base as to have the gall to say anything derogatory with the intent to cause shame, then they are not worth my time, my words, my respect or my love. It takes a mammoth task to encourage oneself when caring for a child with a disability. So I will not ever again allow anyone to set my soul off-balance into self-loathing. I do too much in a day to waste time picking myself up off the floor.

If you don’t have a plan to protect yourself, then grab a pen and page, and take some time to answer the *questions above and you will start working out your own plan on how to guard your personal space. That is what your body is. Your personal space. And no one may physically, verbally or emotionally violate your body. Got that?

Once you learn to respond to hurtful comments without feeling ashamed and angry, you will realise that your response will simply be a matter of stating facts. I taught my children how to do this after I worked out how to do it for myself. They know that if anyone dares to cross that line with them by making inappropriate comments about their physical appearance, then they have my permission to shut them down with statements like:
“Wow, that’s not nice to say.”
“You think like that? I’m glad you aren’t my mum or dad”.
“I like myself the way I am. If you don’t like me that’s your problem.”
“You be you and I’ll be me”, or Talisa’s own line said with a huge smile
“I’m fearfully and wonderfully made. I’m okay”.

Oh my friends, this Christmas the best gift you can give is to find your strength, keep your balance and maintain your peace.

Now, I’m off to indulge in a vegetarian hot dog on a buttered white roll with homemade potato chips and caramelised onions. And later while I watch today’s episode of Masterchef Australia, I will devour my Carb Clever Chocolate Bar.

Yum. Yum.

Woah! What a week it’s been. I’ve had a couple of balls up in the air with a few landing where I wanted it to, and others not landing at all. That is how life goes, right? You win some and you lose some. Some people work with you and others work against you.

The challenge is how to keep my pace, motivation and stamina to keep pushing forward. I know that owning my own truth and respecting the journey plays an important role in being successful wherever God plants me.

Last week I wrote about my affinity to Maleficent, a Disney fairy Queen, and this week I’ve been reflecting on the life of Frida Kahlo. I was speaking at an event where the theme was inspired by this controversial artist.

I know a little something about what a person goes through when living with physical pain that will only get worse. For this reason I have much respect for Frida Kahlo’s persistence to do what filled her soul and to express her journey with such blunt honesty.

In our age we are largely defined by the visual content that we share on social media platforms. We are able to instantly create a community with similar ideas to us and we quickly find ourselves belonging to a social network.

As a participant in a women empowerment programme earlier this year, I became aware of what makes a good selfie and what makes a great selfie. I’m not shy to admit I’m still hopeless at this. I don’t have a discerning eye for colours, lighting and poses. I just want to capture the moment in case I miss it. And so alas from time to time, you my dear readers will be subject to a few really bad selfies from me.

This new way of living whereby we capture our lives and shared it through visual mediums with the world is exciting. Businesses are flourishing as anyone can now make their products available far more quickly to a wider stream of people. Being a social media expert is also quickly becoming a career for many people.

It’s an exciting time to live in.

I wonder though if Frida Kahlo was alive today, would she enjoy the same level of respect and admiration as she has gained since her death? Would we have “liked” the graphic and violent artwork depicting her physical and emotional pain?

Broken Frame (1944) https://www.fridakahlo.org/the-broken-column.jsp is a graphic portrayal of her semi-nude torso after her back surgery. If that appeared on our timeline would we have clicked “like” or would we have scrolled on because her post would not have improved our own social media presence?

The Two Frida’s (1939) https://www.fridakahlo.org/the-two-fridas.jsp is another symbolic portrayal of Frida Kahlo’s emotional state regarding her husband Diego Rivera. I wonder if this piece would have been reposted or would we have commented on the dress and completely ignored the broken heart?

Oh yes, then there is that facial hair depicted with clarity and confidence in many of Frida’s self portraits. How many people would have unfollowed her on social media after she might have shared one of those pieces?

What would have become of Frida then? What would have happened to her bravery and her self esteem? Would self doubt have set in and would she have stopped painting? What a travesty that would have been? And what a void that would have left for the generations since.

Whether we agree with how Frida expressed herself or not, her influence is undeniable. By using her platform as an artist to mirror her life, and in turn by mirroring the lives of many people who face insurmountable struggles; Frida gave heartache, strength and courage a face. Her work is honest and raw. It is untainted by the influence of how many Instagram followers she lost or gained.

It seems that social media statistics seems is the benchmark for what we decide to feed our intellect and our hearts with. For myself, I hope to remain true by continuously living the truth of my journey with integrity and bravery. Our children need to know that we were more than perfectly taken selfies. They will need to know that we were genuine in our joy as well as in our pain.

So tell your story.

Even when they unfollow you.

Someone, somewhere is waiting for your bravery to set them free.

To our daughter Savannah.

Today the world celebrates Autism Awareness Day.
We don’t need a day to celebrate you. As an autistic person you have taught us so much about Love and Respect.

You have challenged our way of thinking and being. You have taught us to let go of what is unnecessary in life and fight like crazy for what is worth living for. Family!

As the world celebrates Autism Awareness, we celebrate our journey with you. We are bound to each others fate in a way only few other parents in this world are bound to their children. Sometimes that’s hard for me, and I know it is hard for you too.

We’ve come so far though, and we’ve survived being judged, lonely, sad, other people’s ignorance and so many of life’s set backs.

We are braver than we knew we could be. We are more resilient. Mostly we are kinder, more gentle and much more appreciative of life because of the journey that you are on.

I hope we make you proud because you make us proud to be your family everyday. Your dad and I love you more than all the sand in the ocean and all the stars in the sky. It hurts when we find that sometimes it is not enough to protect you and ourselves from the harshness of the world we live in.

So let us hope as the World turns its attention to Autism, they will make real changes that truly impact your life in a way that is meaningful to you.

Wherever we go to from here, please remember this:

I Do Not Cry For Who You Are

by (author unknown)

Tears have stopped falling
On the fragments of my dreams,
I no longer mourn illusions
Of yesterday’s reality.

Tears that fell so often,
Almost every day,
But that was when the rain poured down,
And the sky was always gray.

Now I feel the sunshine,
And the sky is blue again,
I’m living on a rainbow,
but I still cry now and then.

I do not cry for who you are
Nor what will never be
My pain’s in the confusion
And the vulnerability

My frustration’s with a society,
That cannot see you’re mine,
My anger’s to the ignorance,
That will never try.

My fear is from uncertainty
That increases over time.
My guilt is deep inside my soul,
Each time they make me cry.

I do not cry for who you are
Nor what can never be
I cry because they look at you
But never really see

They don’t see how the differences,
Could make the world complete,
They can’t all live on rainbows,
It’s just not meant to be.

You are not responsible,
For all that we’ve been through,
I would not change you for the world,
I would change the world for you.

All our love

Mum and dad x

By Desirae and Michael Pillay (non autistic parents to Savannah Pillay, an autistic young adult)

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